I saw my rheumatologist a week ago Monday. On that day I had started the medication he recommended just 3 days before. To soon to tell anything yet. I was shocked to hear him say that patients who have never been on an opioid have a higher percentage rate of it working. What? Now you tell me. I'm always in that low percentage so I didn't like hearing this. Never the less, I'm thrilled to no longer be taking the pain medication. I'm at the point that every day that is a "normal" day my pain scale is level all day. It never decreases, only increases with activity. I can live with this much better than the highs and lows of the way narcotics effect you. If this new medication will help my FM pain I will feel really good about the place I'm in right now.
The first Monday of December I saw my therapist and asked her if I could taper off of my antidepressant. I really expected her to say no. What I was taking is also good for anxiety so I didn't think she'd go for it. At the end of our session she told me it was obvious to her that I was still hurting but she saw many differences. The tone in my voice, the sound of hope, and some smiles. (Geez, didn't realize I never smiled) She said, "YES". Woo hoo another one bites the dust. ( pills ). I've been off it for 11 days. So far so good.
I really believe everything I've been trying in the past and taking now was not helping because of the narcotic. Last week I had a particular day that was tough for me. That night I had hives by the time I went to bed on my arm on my hip on same side. The next day I was down most of the day. Sore muscles, nerve spasms in most of the FM tender points. The good news is that I seem to be having fewer of these days. If I'm at home and don't over exert myself with something out of my normal routine I can say I'm doing better. Again, the day to day pain has been so much more manageable than before. I know this is it. This is my life. I think part of dealing with it better is that I no longer have any idea of what "normal" feels like. You don't miss what you don't remember. I have no clue what it would feel like to wake up and feel well.
I'm still walking as often as I can. If you suffer from back pain and you can manage to get started it will be so beneficial for you. If you don't do something to continue to strengthen it, it just gets weaker. Does that mean it's easy...no chance. I really do a lot of "I can do it" chanting and I listen to Christian music while I walk. It has become therapy mentally and physically for me. I get a natural "high" when I make it to the finish line. It must be something like that for runners. It is a big challenge, and you should take it on. It is so worth the time you put into it. Stretching after it must, so it adds a little more time. If your going to do it, do it right so you really do some good. I feel the best I feel all day for the first hour after my walk. Web MD has some great stretches for people with lower back pain. Do's and don'ts. You have to make sure they are ok for your particular case.
So what am I up to right now? I'm recently obsessed with The O'Reilly Factor. I've learned more about politics since the Michael Brown shooting than I've learned in my adult life. Not to mention all the other things going on in this INSANE crazy world we live in.
I'm making a reading list. All of a sudden there are a lot of new books out I want to read. Also some new music I'm interested in. I'm not stressing out about Christmas. What I get done, I will. What I don't, I'm really not that concerned about it. That's unusual for me.
Going to the movie theater is not big on my list. To hard to sit through the movie. I'd love to see the Hobbit (The Battle of the Five Armies) and Unbroken....at the theater. If I go once a year that's a lot for me so I'm challenging myself. There are some movies you just need to see on the big screen. Last night my husband and I watched "When the Game Stands Tall"
It was awesome and I highly recommend it. It's based on a true story.
What am I excited about.....what else? The Celebrity Apprentice is BACK! Jan 4. A great cast of celebrities. The only thing that makes up for the end of DWTS.
Alfonso was my pick from the beginning. I was so happy for him. Everyone in the final four was great though. All deserving.
Tomorrow will be two weeks on the new medication. I really want to believe it's helping. Time will tell. Oh and one more thing. I found some research that links hives with FM. I've been doing a lot of trials of getting off of things to see if that was the cause. I really believe I've found my answer, which is, they are not going anywhere. Monday I had to have a biopsy for a spot on my arm and it just so happened that the other arm had several hives out. I discussed with my dermatologist once more and showed him some pictures so he could see how many more I have at one time these days. Not to mention the size of them seems to have increased. He gently told me after this long I can't count on one thing, they are here to stay. The good news is that studies have found that sometime in your 60's you "outgrow" them. Such a hilarious term. I'll be 50 in a few weeks. 10 down 10 to go. Something to look forward to.
Wishing everyone a very Merry Christmas and a safe and fun New Year.
|The joy in my heart|